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Friday, October 20, 2006; Chat of the Day
Topic Started: Oct 20 2006, 04:16 AM (1,286 Views)
peppermint
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Fuchs=fox....well that makes perfect sense! Elaine is one foxy lady!!!! ;)
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ElaineRuth
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peppermint,Oct 21 2006
11:44 AM
Fuchs=fox....well that makes perfect sense! Elaine is one foxy lady!!!! ;)

If I weren't such a refined lady (teehee) I would tell you what it means to me....... and it's NOT fox.
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kljinusa
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ElaineRuth,Oct 21 2006
02:15 PM
peppermint,Oct 21 2006
11:44 AM
Fuchs=fox....well that makes perfect sense!  Elaine is one foxy lady!!!! ;)

If I weren't such a refined lady (teehee) I would tell you what it means to me....... and it's NOT fox.

That's where my mind was too, ER... LOL

Anyway, you can't blame yourself for inheriting a defective gene you didn't know existed. Most of us have some type of defect or another, but medicine is advancing and it sounds like there are treatment options.

I am curious as to how you sought treatment, was a routine eye exam that brought it up or were the symptoms a warning sign?
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cdn-cdn
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Elaine, it's a good thing that you (with your hubby) returned to the doctor for another chat. He should have chosen his words more carefully the first time. The good news for both you and your children is that there are treatments. If your children do have the condition, as others have stated, there will likely be advances in the treatment options by the time they may need something. Take care, I do hope all goes well for you.
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Cumbrian
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ElaineRuth..........I agree with all the other members that have responded to your very interesting, and informative post, regarding your eye condition.

You cannot blame yourself for an inherited gene...........and..........the treatments are advancing so much that when/if they are needed the technology will be there.

Easy to say...but take one day at a time my dear friend. Please know too that we are all here for you if you need to vent any more!

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Hulabird
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He who cuts down trees probably took his chain saw with him so the doctor (who got through med school and so isn't entirely stupid) figured he'd better change his tune.
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ElaineRuth
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kljinusa,Oct 21 2006
08:41 PM
Anyway, you can't blame yourself for inheriting a defective gene you didn't know existed.  Most of us have some type of defect or another, but medicine is advancing and it sounds like there are treatment options.

I am curious as to how you sought treatment, was a routine eye exam that brought it up or were the symptoms a warning sign?

Hi Karen. And thanks to everyone for all their kind words and thoughts and prayers. Keep 'em coming. You don't know how much it helps.
As an aside, I'm sure you all remember our State Senator Edwards who ran for Vice President last time. Toward the end of the campaign, his wife discovered she had breast cancer. She had also lost her 16 year old son to an auto accident. She has a new book out and has been doing the usual round of interviews. The thing that struck home with me was when she said the one thing that got her over all this and helped her to come back into the world (after son's death) was a support chat group that she found on the internet. Just imagine, this very educated woman (lawyer) with an immense fortune, and the only place she found the help she needed was here on the internet with people just like us. Maybe we're not with the same problems as she but still, a 'Family' in a very real sense of the word!
I appreciate each and every one of you, my 'Family'.

:wub:
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ElaineRuth
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Karen, I never did answer your question! I first went to this doctor 5 years ago for a persistant eye infection. This is a very large Practice here with a great reputation. It was discovered at that time that I had Dry Eye Syndrome, Narrow Angling (watch out for Glaucoma with that), Chronic Blephoritis. All of these are very common and many people probably have one or more without even knowing it. He eventually removed cataracts and put in artificial lenses.
This doctor dictates to his assistant as he looks into the eyes and from the first time I remember him saying "Positive Guttata' at each visit. Such a funny sounding phrase, it stuck in my memory. Now I know that that is one of the first symptoms pointing to this "Fuch's" thing.
Anyway he had me going back at regular intervals for 'rechecks' and to just keep an eye on my Optical Health (oh, a pun). I liked that. But he is a young man who doesn't want to alarm his patients before there is a need. All this may not have progressed. But now it has and now he knows that I am the type of person (retired nurse) who needs to know all the facts and not be kept in the dark! (Oh what a terrible pun). The more information I have, the better I can understand and handle it.
So, short story long, that's how I started going to him. Before that, I had just gone to a regular Optometrist for glasses. I highly recommend everyone to have at least a baseline exam with an Opthamologist.

(forgive typos)
(and unintended puns)
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